Tuesday, May 29, 2012

May 29th Appointments...

Today Matt and I met with CAFCA and with Dr. Sanjay Kaushal.  At the first appointment with CAFCA we found that Adriana is now 2 pounds and 15 ounces.  She is in the head down position (vertex), and is still doing some crazy movements in there!  Steady growth and movement are a good sign.

Our second appointment was with Adriana's future cardiac surgeon, Dr. Kaushal.  This was the first time we've met him, and so he gave us the complete low-down.  Dr. Kaushal explained that depending on how Adriana's right ventrical grows and functions, will depend on the type of surgical procedures he will have to perform on her heart.  If her right ventrical proves to be healthy and successful in assisting blood flow, at around 6-8 months of age, he will surgically close the hole between the two ventricals.  This particular surgical procedure has proven to have over a 90% success rate, and it would be her first and last heart operation.  However, if her right ventrical is not sufficiently large enough, two different surgeries will have to be done.  The first will be at 6-8 months of age, and she will  have to have a band around her pulmonary artery to restrict blood flow to the lungs (to make sure blood disperses evenly throughout the body).  At around 3 years of age, she would have to have a Glenn Shunt.  These two surgeries have a 90% success rate.  Surgeons have been implementing these procedures for the last 20 years, so they are not new or unheard of.  Many of the babies who had these surgeries are now in their 20's, living good lives.  In the last 4 years, UMMC has not lost any of these children/babies and they continue to perfect these operations.

Dr. Kaushal reiterated that we will not know which path we'll have to take until after Adriana is born and she has a series of CT scans as well as echos.  We hope for the best.


Monday, May 14, 2012

Adriana is Steadily Growing...

Today Matt and I met with the doctors at the Center for Advanced Fetal Care and then soon after we met with Dr. Chaves (our pediatric cardiologist).  Adriana is now 2 pounds and 2 ounces--she's gained a pound in 2.5 weeks!  It's good to hear that she's growing steadily, and helps suppress some of our anxiety.  Dr. Chaves also said that her heart has not changed. She is still convinced that Adriana will be perfectly fine for the first few months of her life.  Most likely, she will not have to have a heart operation until she is an older infant.  Dr. Chaves also thinks that she will only have to undergo relatively simple procedures as she grows.  The specialists at UMMC will continue to monitor her growth and her dextrocardia as time goes on, since this such a rare condition.  Her exact cardiac make up is not comparable with anyone else's, but we are confident that she is in good hands.

Next appointments:

May 29th: Center for Advanced Fetal Care (Dr. Baschat) and Pediatric Cardiac Surgeon (Dr. Kaushal)

June 18th: Center for Advanced Fetal Care (Dr. Baschat) and Pediatric Cardiologist ( Dr. Chaves)

Photos and Backgrounds of Doctors Specializing in Pediatric Cardiology at UMMC, Found Here