Friday, September 21, 2012

Good News...

Adriana's oxygen saturations went up again!  She has gone from 85 to 90 to 93!  We are very excited, especially because this past week she has had a cold.  It's encouraging to know that it did not affect her in the least!  Addy is now 8 pounds, 13 ounces and eating "like it's going out of style", as my mom would say ;)





This past weekend we also attended the Air Show where Daddy works at Martinsburg Air National Guard Base:



Thursday, September 6, 2012

A Visual of Adriana's Heart

Matt, the kids and I attended Addy's cardiology appointment today.  Good news--on top of steadily gaining weight (she is 8 pounds 2 ounces now), her oxygen saturations went up!  She is now back up to 90!  Anything under 95% is still described as a "blue baby", but her body will cope well until saturations drop below 80.  When it drops (later down the road) we will consider beta blockers, and then the plan is surgery between the age of 4 and 6 month--as long as her tissue obstruction in her pulmonary artery does not call for  an earlier intervention.

I have attached a drawing of Addy's heart that I copied from Dr. Baker-Smith.  She is almost 100% convinced that both VSDs will need to be closed, but the ASD should not affect her.  She predicts that the obstruction, if it does not worsen, should only need "patchwork" for the pulmonary artery to function properly.  A shunt is most likely unneeded (cross your fingers), since the annulus of the pulmonary artery is of sufficient size for blood flow.  Again, that would mean the one surgery would suffice, and Adriana could move on with her life as a normal child, save for a few routine cardiology check-ups throughout her years.

VSD = Ventricular Septal Defect
ASD= Atrial Septal Defect
Purple Arrows = mixing of oxygen-rich and oxygen-poor blood